Charity-Industry Partnership Case Study Library

Introduction

The ABPI supports partnerships across Health Charities and ABPI Members that deliver better experience and outcomes for patients.

The ABPI's Charity-Industry Partnership Case Study library has been developed to support building greater awareness and understanding of partnerships. The library hosts a collection of member case studies that showcase examples of the impact working together can achieve. This library will be expanded further with additional case studies as part of the ABPI's ongoing commitment to Patient and Public Involvement.

The ABPI and its member companies share a common belief in the power of partnerships as the best way to improve outcomes for patients, address healthcare challenges and support the delivery of sustainable NHS health and care across the UK.

Partnerships have taken place for many years. As a commitment to open, ethical ways of working, pharmaceutical companies publicly disclose the transfers of values made to healthcare professionals and organisations, patient groups, and certain members of the public. Values related to partnerships with patient organisations and certain members of public, including patients, are published on individual company websites, and signposted within www.disclosureuk.org.uk.

For more information on how to partner, visit Working together – a handbook for Industry and Patient Organisation Partnerships.

Note: All case studies have been reviewed by the relevant companies for factual accuracy.

Beyond the Bell: Helping women find a new rhythm after breast cancer treatment

Beyond the Bell was a co-created partnership between Novartis UK and Leanne Pero MBE, founder of Black Women Rising. A campaign film and social media campaign used the medium of dance to explore life after active breast cancer treatment. Together, the partners combined patient insight, lived experience and communications expertise to raise awareness of recurrence concerns, encourage more open conversations, and ensure women felt better supported beyond treatment. The partnership demonstrates how patient communities and industry can work collaboratively to develop meaningful, patient-centred programmes grounded in real-world experience.

Taskforce for Lung Health and Industries Forum

The Taskforce was established in 2018 with a mission to improve the nation’s lung health. Respiratory conditions affect around one in six people in England and are the third leading cause of death Its recent publication, Breathing Life into the NHS, July 2026, called for an NHS respiratory modern service framework.

Earlier diagnosis, better beginnings for babies with SMA

The partnership focused on improving understanding of spinal muscular atrophy (SMA) and the importance of early diagnosis through newborn screening. The work took place during a critical period of national policy discussion, when delayed diagnosis continued to have a significant impact on outcomes for babies and their families. It contributed to the approval of a two‑year newborn screening pilot in Scotland and shortened timelines for the in‑service evaluation process in England.

Partnering with parents to develop flu vaccine information

Ensuring children's flu vaccination information meets the need of parents: An AstraZeneca & Patient Information Forum Collaboration

True Faces of Rare: Shaping visual representation of people living with rare diseases

True Faces of Rare (TFOR) is a first-of-its-kind collaboration between Chiesi UK and Ireland and Metabolic Support UK.

Unseen Unheard - The untold breast cancer stories of Black Women in the UK

Unseen Unheard, the untold breast cancer stories of black women, is a disease awareness initiative developed and funded by Gilead Sciences in partnership with Black Women Rising, a grassroots patient support project from the Leanne Pero Foundation, a pioneering cancer charity.

Patient Information on Genomic Testing

Roche UK and Salivary Gland Cancer UK partnered to address an unmet need for clear, accessible information on genomic profiling for patients. Beginning in autumn 2021, the collaboration aimed to co-create a resource that would help patients understand the purpose and potential benefits of genomic testing.

#BloodyAmazingKidneys Campaign

Kidney Care UK and AstraZeneca UK partnered to raise awareness of chronic kidney disease (CKD) and empower individuals to manage their kidney health through Kidney Care UK’s #BloodyAmazingKidneys campaign.

One Immune Voice Podcast series

The ‘One Immune Voice’ podcast series was a collaborative initiative between J&J and six Patient Organisations representing people with autoimmune and immune-mediated conditions.

Team of office workers sat around a large conference table having a meeting

Knowledge Lab – annual education workshops for patient organisations

The Knowledge Lab annual workshops, initiated by GSK in partnership with patient organisations such as Myeloma UK, The Eve Appeal, and Bowel Cancer UK, aimed to build meaningful partnerships and enhance the capabilities of oncology focused patient organisations.

Parkinson’s Health Equity in R&D - Community Leaders Board

To improve the representation of under-served communities in clinical trials for Parkinson’s disease.