ABPI welcomes UK Rare Diseases Framework

The Department of Health and Social Care has published the UK Rare Diseases Framework today, a national vision of how the UK will improve the lives of those living with rare diseases.

Cutting edge research means that there will be even more exciting, new treatments developed for rare disease patients. We look forward to continuing our work in partnership with Governments across all four nations to make the ambition of this framework a reality for people with rare diseases and their families. ABPI President Haseeb Ahmad

Welcoming the news, ABPI President Haseeb Ahmad said:

"Today’s strategy sets out a welcome ambition for how people with rare diseases can get a fast diagnosis and access to treatments they desperately need.

"Cutting edge research means that there will be even more exciting, new treatments developed for rare disease patients.

"We look forward to continuing our work in partnership with Governments across all four nations to make the ambition of this framework a reality for people with rare diseases and their families." 

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The ABPI exists to make the UK the best place in the world to research, develop and use new medicines. We represent companies of all sizes who invest in discovering the medicines of the future. 

Our members supply cutting edge treatments that improve and save the lives of millions of people. We work in partnership with Government and the NHS so patients can get new treatments faster and the NHS can plan how much it spends on medicines. Every day, we partner with organisations in the life sciences community and beyond to transform lives across the UK.