Bob Stevens Council Member
Photo of Bob Stevens

Bob Stevens

Download Photo

Having two sons diagnosed with a rare disease (MPSII) changes your perspective and priorities in life. Having spent over 20 years in construction, many of which were at Board level, I decided to pursue a career in the Charity sector. At first, I became a Trustee and eventually I progressed to become a Managing Director and Group CEO of various patient organisations, supporting those living with rare diseases and complex needs.

I wanted to bring together my family experiences of a "Rare life lived" and commercial attributes in order to improve the lives of those most marginalised in society whilst, at the same time, helping to create a more sustainable financial future for patient organisations both in the UK and globally.

As well as being Group CEO I am proud to serve as Vice Chair of the LSD Collaborative, Co-Chair of the worldwide International MPS Network and work as a patient representative for MPS in various global charitable access programs that provide a possible lifeline to treatments in selected areas of the world. These are not job roles, but a way of life!

ABPI Patient Advisory Council

The ABPI Patient Advisory Council - made up of eight chief executives or members of the executive leadership team from across UK patient organisations, provides ABPI Board Members and Senior Executive Team with meaningful patient engagement to inform strategy, policy priorities and work-plans across the ABPI.

ABPI Patient Advisory Council