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The Expert Patient

Anatomy of the modern patient

Scientific medicine has never been better. But the more it achieves, the less it seems to satisfy. Modern patients are said to be doing better but feeling worse. What distinguishes them from those of 50 years ago?

Better education The number of undergraduates increased by more than 80 per cent between 1970-71 and 1996-97. This includes a four-fold rise in the number of women students. Over the same period there was a 12 fold rise in women enrolling in postgraduate courses.

The consumer movement So-called patient power is a by-product of the consumer movement which began in 1963 with the formation of the National Consumer Council, forerunner of the Consumers Association. For years, patients’ rights were not so well articulated as women’s rights, democratic rights, or black civil rights, but now they are assuming a sharper definition.

Access to information Denying patients information used to be official NHS policy. Hospital case notes were stamped ‘Not to be seen by the patient’. Now the Department of Health is inviting the modern patient to join the information revolution.

Great expectations The NHS was a triumph for the social ideal that medical care should be administered according to medical need rather than the ability to pay. It was heralded as the envy of the world and initially, unlike today, public expectation knew no bounds.

The NHS-doctor relationship An increasing worry since the Health Service reforms in the late 1980s. Recent reports that doctors have been telling patients that ‘no more can be done’, when the NHS will not pay for certain treatments, highlight the scale of the problem. The elderly may be particularly vulnerable.

The NHS-patient relationship The early success of the NHS created a unique bond between government and patient. No other state-funded institution has been regarded with such affection as the health service. This was summed up in 1988 by Dr David Owen, a medical practitioner and former Labour Health Minister, in his book Our NHS.

He wrote: ‘The NHS belongs to us all because it is personal to us all. Most of us have cause to be grateful to it at some time in our lives. A distinctive feature of the British health care system is the extensive and personal nature of the care available… there are no essential services which are not available free at the point of demand.’

Recalling his son’s successful treatment for childhood leukaemia, he said: ‘At no time during the treatment, which cost something like £47,000, did we ever have any financial anxiety to add to all the other anxieties that we and many more families undergo in these circumstances.’

He was speaking for millions, but the worry of the availability of treatment has severely damaged the NHS-patient relationship – and with it the doctor-patient relationship.

Rationing The first NHS generation was brought up on ration books, but could not have foreseen the modern era of ‘postcode prescribing’. All over Britain, for a variety of illnesses, people are not getting medicines that could help them. Some Health Authorities make new and expensive treatments available, while others discourage or even prohibit their use, often on cost grounds.

Complementary medicine The new pick’n’mix medical culture is said to represent a flight from science. More than one in five people in the UK have used complementary medicine in the past year, compared with one in ten six years ago, according to an independent ICM poll. But research suggests that this is not because of any rejection of orthodox medicine. Patients want choice.

 


 

100 YEARS AGO

As patient models go under the microscope in the new millennium, this report by a doctor in The Grand Magazine in 1905 highlights a century of progress.

‘In every hospital recognised by the Medical Council as a place of instruction for students, the treatment of patients is entirely subordinated to the instruction of those students. If a woman objects to being stripped for the casual inspection of two or three dozen youths, she is forthwith ordered to leave.

‘If a man objects to having a painful ulcer of the tongue meddled about and ‘examined’ by the dirty fingers of the same youths, he is also sent about his business. Quite recently, I heard a railway signalman make such a request. It was four o’clock, and he had been waiting since twelve. He had been pulled about by every student in the room. They had each been questioned at length concerning his ailment. The visiting surgeon had given a long ‘demonstration’ on him, and was then discussing an entirely different question – the man standing idly by the while, and all the other patients waiting in a barn-like corridor. When the surgeon stopped speaking, and began to draw diagrams on the board – diagrams which had nothing to do with the case in question – the man mildly and politely asked if he might go, as he was urgently wanted ‘on duty.’ He was instantly told to ‘shut his mouth.’ For 40 minutes did that man wait, and then the surgeon said: ‘Dear me. How late it is! We must get on’, and to the signalman: ‘All right, don’t stand about there – you can go’. This is a very common experience.’

 

 
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